Dairy and fibromyalgia

topic posted Thu, January 6, 2005 - 5:28 PM by  Redd
Hi, I'm not allergic or lactose intolerant, but I do have fibromyalgia and I was told that eliminating dairy from my diet and eating things high in protien could help me considerably. I was wondering if anyone else has had experience with this condition and if eliminating dairy helped them at all.
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SF Bay Area
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    Re: Dairy and fibromyalgia

    Wed, January 19, 2005 - 7:13 PM
    Hi! I have fibro, and have found that eliminating anything processed -- including dairy (often from cows treated with hormones and antibiotics) -- has helped tremendously. Along those lines, sugar, caffeine, and exposure to household chemicals all aggravate my fibro.

    On the other hand, I feel better NOT eating meat than when I do.
    • Re: Dairy and fibromyalgia

      Sat, September 24, 2005 - 8:46 PM
      I have found cutting dairy and processed food helps with my fibro as well. The book "Eating Alive" helped a great deal.

      Kisses -
      • Re: Dairy and fibromyalgia

        Thu, July 13, 2006 - 3:31 PM
        Wow. I'm interested to know more about the link between these two. Part of the reason I have been absent from tribe lately is because of severe Fibromyalgia. I am barely starting to figure out what correlation the two have, if any. I already didn't eat dairy products when I was diagnosed with FMS. Nowadays I don't know what is truly causing my symptoms anymore.
        • Re: Dairy and fibromyalgia

          Fri, July 14, 2006 - 8:19 AM
          I may have something like fibro, or possibly some sort of rheumatic arthritis (no diagnosis at this time, but almost every symptom),but I beleive that not eating dairy helps both conditions a great deal. There have been studies that strongly indicate that overuse of dairy when allergic can even lead to rheuamtism.

          I think that, as far as meat is concerned, its up to the individual. I felt worlds better when I started back on meat, but have to keep a check on my intake.

          I really like to be as easy on my digestion as possible, so eating lots of raw foods doesn't work for me, other than nice, big salads. Steaming lightly or broiling are best.
  • Re: Dairy and fibromyalgia

    Sat, July 15, 2006 - 12:36 PM
    I'm lactose intolerant, and have figromyalgia.
    Now that you mention it I've been noticing that dairy not only causes intestinal trouble, but fibromyalgia symptoms as well.
    • m
      offline 110

      Re: Dairy and fibromyalgia

      Sat, July 15, 2006 - 7:06 PM
      I am afraid that your source may not be quite on the right track recommending elimination of dairy AND an increase in protein intake (specifically meat). Remember, dairy has a significant amount of protein, too. Elimination/reduction of foods with a high amount of processing, added chemicals and preservatives, as well as a reduction in dairy is probably a better route. Try to eat a diverse diet of as many colors and types of fruits and veggies as possible (vitamins, minerals, protection against numerous diseases). Whole grains, seeds, nuts and beans will give you more than enough protein and fiber. Surprisingly this also provides enough calcium for most individuals, though 1,000mg daily calcium supplement is recommended for females. As always, make sure to drink plenty of water (for any active person, this is much more that 8 cups/daily).

      These recommendations will aid everyone (obviously excluding anyone with specific sensitivities to one of the foods listed) to achieve a healthier overall state of being.

      Good luck!
      • Re: Dairy and fibromyalgia

        Sun, July 16, 2006 - 12:52 PM
        I have a hard time with the protien end of it all. I can't have "Whole grains, seeds, nuts and beans " as well as processed foods due to gluten sensitivity, and diverticulosis.
        What other ways are there to get protien, if I give up meat... all that's left is eggs... (?)
        • Re: Dairy and fibromyalgia

          Mon, July 17, 2006 - 7:23 AM
          ...and beans! Beans and rice are a perfect protein.
          • Re: Dairy and fibromyalgia

            Mon, July 17, 2006 - 10:55 AM
            can't have beans... gluten...
            but rice? cool I eat a lot of rice :0)
            • m
              offline 110

              Re: Dairy and fibromyalgia

              Mon, July 17, 2006 - 12:53 PM
              hi anni,

              I am so sorry that you suffer from so many dietary issues, and will do my best to point you in some helpful direction(s). First, I need to know why it is that you can eat beans, nuts and seeds. Is it because of the diverticulitis? Something else? I will explain where I'm going with this and give you some info after I get more info from you.

              hugs & health to you,
              • Re: Dairy and fibromyalgia

                Mon, July 17, 2006 - 1:32 PM
                Okay here's the full low down:

                lactose intolerance
                (no lactose whatsoever)
                celiac sprue/gluten sensitivity
                (no beans,peas,wheat,rye, whole grains,oats,barley, no processed foods, etc... )
                [diverticul-itis is only when there is inflamation when its not inflamed its referred to as deverticulosis]
                (no whole grains, no nuts (if its ground nut like flour or organic creamy peanut butter I can have it...), no popcorn, nothing that might not digest properly)
                Iritable Bowel Syndrom
                ( watch for things that cause constipation...)
                (easy on protiens, no sugar, no carbonation... I don't know much about this one...still learning)

                My diet is so limited most days I just want to scream....
                or cheat which always ends badly...
                I basicaly live on vegies,fruits, rice, eggs, corn products, chicken, (now I'm trying to do without chicken too) and tons of water ... and even there I have issues I can't mix certain fruits together or I get deathly sick...
                (strawberries and bananas are a big no no for example... and I'm alergic to frozen strawberries for some weird reason as well as cantalope... )

                is that enough info for ya?
                thanks for your concern I really appreciate it :0)
                Three years ago I almost died until with the help of books and doctors I figured out what was making me so sick... It took several series of different antibiotics as well to finaly get me back to semi-normal... heck I'm just glad to be alive ;p
                • Re: Dairy and fibromyalgia

                  Tue, July 18, 2006 - 7:48 AM
                  I'm so sorry! that's just terribel.
                  Is there a reason you want to give up chicken? It seems like it would be almost the only protein you can eat right now...
                  • This is the maximum depth. Additional responses will not be threaded.

                    Re: Dairy and fibromyalgia

                    Tue, July 18, 2006 - 11:33 AM
                    well... I understand that meat protien makes the fibromyalgea worse and I'm trying to feel better... I do get protien from eggs and rice. Its not as bad as it looks. Just proves you can get used to anything if you have to. :0)
                    • Re: Dairy and fibromyalgia

                      Tue, July 18, 2006 - 11:35 AM
                      "Just proves you can get used to anything if you have to. :0)"
                      That's true! I have friends that get a little freaked out at my allergies, saying they couldn't stand living that way. But they could, if they had to.
                      • Re: Dairy and fibromyalgia

                        Thu, July 20, 2006 - 9:34 AM
                        People always ssy to me "I feel Soooooooo bad for you. How could you LIVE without eating dairy." Well, I do! haha. There is no food I wouldn't eliminate from my diet in order to have amazingly better health. I just can't believe that some people eat what they eat... Like processed foods and junk. And they think I'm the one missing out. LOL
  • Re: Dairy and fibromyalgia

    Mon, June 7, 2010 - 6:59 PM
    Hi, I'm new to the tribe, I too have fibromyalgia, I have regular allergies, chemical allergies, and when I was born was deathly ill from stupid docs and lack of caring, because of a protein allergy to milk. They took me to a different hospital, put me on a meat based formula and I forward 30 years.. Fibromyalgia has me in a stronghold, and I'm enjoying an icecream.. all of a sudden my stomach begins to hurt like someone ripped it out.. what the hell is happening! It happened over and over for a whole year, progressively getting worse, getting hives when eating things with the littlest bit of milk in them, I tried lactose pills, tried everything under the sun...nothing. Finally researching online found that there was a "protein" allergy, and yes, it did happen to adults too. So.. I went to the doc, said.. you have to fix this.. I can't not eat things with milk in them.. it's in EVERYTHING! Even in things that don't have MILK listed as an allergin! It's like..the world is out to get us.. My sister and 2 cousins are celiac, and now I'm this..and want to be tested to see if I'm allergic to anything else as can be interesting..but found that without the milk in weight is slowly going down, but my really not changing much.
    There's got to be something they can do about this..Celiacs have a promising pill coming up in the horizon (2 years ago I believe, my sister went to a confrence, where they discussed a pill they could take several hours in advance of eating small portions of wheat..
    Anyway..sorry I talked so much..just had a lot to discuss..hope you all are doing well; Joanie
    • Re: Dairy and fibromyalgia

      Fri, August 27, 2010 - 12:38 PM
      Hi Joanie!
      Welcome to the tribe. I have really enjoyed reading your story because it is very similar to my experiences with both allergies and Fibromyalgia. I ate dairy most of my life, and didn't know that certain symptoms (skin issues, weight, acid reflux, asthma, immune problems) were related to my dairy allergy. I only noticed it when my stomach actually hurt.

      Fast forward 5 years from the last time I posted on this thread (in 2005!) and I feel as if I am managing my pain and allergies really well now. I realized it really doesn't matter what causes what. What matters is that when you notice that a certain food or activity or medicine or supplement is working for you - DO IT, and don't let anyone else tell you not to. Don't let yourself get away with self-defeating behaviors that actually exaccerbate the problem. Take responsibility to do all the things you can do, and ignore the stuff you can't. I mean, that is a good general rule about life anyway, but when it comes to allergies and illness I thnk it helps restore some sanity to the equation!

      I'm really glad you found us over here... I am glad people are still posting and enjoying the forum. Feel free to share whatever works for you, and any ideas or questions you have. I'm not any kind of expert... just living dairy free for 9 years and counting. I'm always excited to hear about other peoples' experiences and find out what we have in common, or don't... Anyway, thanks for joining in the conversation!

      • Re: Dairy and fibromyalgia

        Thu, September 1, 2011 - 2:26 PM
        I had no idea there were so many of us who are living dairy free and dealing with fibro at the same time!

        I've been living dairy free for more than 15 years - long before I was diagnosed with fibromyalgia (although the symptoms were present for decades before the diagnosis), and it's interesting to find others who are in similar situations to mine.